 Melissa Bester suffers from Puetz Jeghers Syndrome. Puetz Jeghers Syndrome, or PJS, is an incurable disorder often passed down through families in which the person develops intestinal polyps and is at a significantly higher risk of developing certain cancers. Studies show PJS patients have a 92% chance of developing a cancer by the age of 40-45.
In 2005 Missy was taken into emergency surgery removing a large part of her bowel due to a blockage caused by a 4.5cm polyp. That day is the day her life was changed forever. She was diagnosed with Puetz Jeghers Syndrome. Since her first surgery in 2005 she has had four additional intestinal surgeries along with numerous “day surgeries” removing countless polyps from her upper and lower GI. Missy was recently hospitalized for over three weeks due to complications with her PJS, resulting in 3 of her 5 surgeries. Missy’s intestines developed so much scar tissue from her “day surgeries” that six and a half feet of her intestines had completely closed, resulting in a life threatening situation, making the surgery necessary. Afterwards, her intestines began to swell causing a complete blockage and resulting in another surgery. During this second surgery her intestine developed a small hole which caused internal bleeding. The doctors put Missy in the ICU where she remained for days on life support while they treated a newly developed blood infection. As she started to heal she was removed from life support but she remained in the ICU to finish the treatment for the blood infection. As the days passed, Missy began to heal much more quickly. Thanksgiving came and went and the days dragged on, beginning to feel longer and longer for her. Three and a half weeks went by and the doctors finally decided that it was now safe to send her home to heal with her loving family by her side. At this time she was still required to do treatments daily through her PIC line. Missy had her last treatment in the beginning of December. She is now on the road to recovery from this last stint in the hospital. We will be hosting a benefit January 26th, 2013 for Melissa to help her with her medical bills. This benefit is also being used to educate and raise awareness for this very rare syndrome. The benefit will include a 5K in the morning, hosted in Shabbona, IL. A ticketed dinner from 5:30-6:30, hosted at the Duke Ellington Ballroom at NIU in DeKalb, IL. Following dinner we will be having cocktails and a special performance by DeKalb County’s hottest country band, Back Country Roads! Please come show your support for Missy and please help us raise awareness! If you would like to help but cannot make the event, donations can be sent to: Missy’s Walk PO Box 56 Waterman, IL 60556 Any further questions can be emailed to Samantha Hunt at [email protected] or (630) 418-1229. We are also taking donation items for a silent auction. If you would like to donate, please use the contact information provided above. Here is the facebook link to the event https://www.facebook.com/events/1274345959372439/
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 It’s been 8 months since I started running and it has been a difficult road. I’ve had my ups and downs with keeping my weight off and I had hit a major wall when it came to my running. There were moments when I would ask myself if this is even worth it. Mentally I knew it was but physically I felt like I couldn’t do it. I was filled with a lot of self doubt, anger, pity and self loathing. At that point I knew I had hit rock bottom.
What turned it around was a friend of mine invited me to run a 5k with her and even though I said yes, I was still doubting myself since I had never ran one before. A 5k is 3.1 miles and I was barely doing 2 miles and even with that I felt like I was dying. Lol. So on September 29, 2012 at 7:00 a.m. My friend and I were headed to Roosevelt Park to run it. When we got there I was intimidated by all the elite runners out there. All my friends on Facebook, my friend Sara, husband and big brother gave me so many words of encouragement that I felt better and had the confidence to stand at the starting line and finish that race. It wasn’t easy but I had the help and courage to start and finish it. That was a proud moment for me and knowing my family and friends were 100% behind me made that moment even better. Since that race I’ve kept up with my running (I’m not perfect at it but I am slowly getting there.) and ran another 5k this past December and signed up for another one this month. I have the running fever. Lol. And since I’ve been running more frequently I have noticed a little weight has come off and I’m very happy about that. This journey has been tough and will continue to be tough, it’s all up to me. Running has definitely changed my life and there’s no turning back, if I give up I’m only giving up on myself and I refuse to let that happen. I can only get better with lot’s of hard work and dedication. Happy Running My Friends! Thanks to Gloria for sharing her post. The original post can be found here. http://wonderfullywisewomen.me/2013/01/22/my-journey-through-the-wall/  "I have been thinking a lot about self-limitations recently and how they relate to our personal experiences, about how we tie our own hands with our self-talk (the dialogue that runs, mostly uninterrupted, in the back of our minds throughout each and every day)." "Everything that we know how to do today and do effortlessly is something that we once didn't know how to do. We weren't born with mad skills, hitting the floor walking and talking, we learned these things. The notion of limitations probably never existed when we were kids although, there was a point in my life where I thought I’d wake up one day and have super powers, like Superman. As we got older however, our imagination seemed to have stop running riot and we started putting “unrealistic” limitations on what we were capable of. As a result, we lost touch of our real potential and essentially told ourselves that we could do some things, but other things were far beyond our abilities. The problem with this is WE WERE WRONG; we actually could do those things that we thought were impossible and more! We built a box around ourselves, set up shop, began living comfortably and put our brain on auto pilot." "It’s no secret that the words we use affect what we believe we can do. When we use words like “I can’t” or “Impossible” we are creating limitations. We have to remember everything that is possible today was once seen as “impossible.” When we see a wall or a cliff that we must scale in order to move on in life and say, "I can't" we will be forever stuck in the same place until we hopefully find a way around it. Would it not be much easier to take the more direct route by shaking off that limitation and deciding "I can!"? What if, from now on, each time we have the urge to say "I can't" or someone else tries to impress their limitations upon us, we turn a deaf ear?" "Is leaving our comfort zone going to be easy? Probably not, we got where we are one thought at a time so it is with reason that it is going to take one thought at a time to change it. What if we fail? Just remember how many times we had to fall to the floor as a child while learning to walk: Any number of times ~ plus one." "What are your limits?" Clayton Bullock claytonsthoughtsonlife.blogspot.com I love reading blogs. Lots of blogs. There seems to be an endless supply of well written, informative and entertaining blogs on the net. I actually have my own but never seem to update it as often as I would like. But this is not that blog; this is your blog. RunJunkEes.com is intended to be for the people and by the people want to be here. Whether it's for the motivational pics, the inspirational weight loss pics, the forums or all the great links in the resource guide the goal is all the same...to provide another place where you can share and inspire.
My hope is that this blog becomes a twist on what you might usually think of when searching out what you want to read. This is not a collection of my thoughts, opinions or advice but instead it's the thoughts, opinions, ideas, information from your fellow JunkEes (yourself included) If you'd like to have an article posted here please send it to [email protected]. If your article contains pics I will do my best to post here in the format that it was sent in. Please be sure to include your name, blog, facebook page, twitter name, etc. if you'd like it to be included in the post. You can send it in any format that I will be able to copy and paste into this page. I'm not sure how many posts there will be to this blog, that will be up to all of you, but I hope many Enjoy! Dan |
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